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Influencer Hannah Campbell honors her late daughter Elliana Rose, who died at the age of 10 months.
“Today we dress with heavy hearts to celebrate life that changed ours forever. This is for you, Ellie,” Campbell headed a video shared through Tiktok on Sunday, April 13, who showed her to apply makeup, curling her hair and dressed and dressed all for the funeral of Elliana.
She also shared photos through Tiktok of her husband Jacob Campbell and their other daughter Ember preparing for the memorial.
Hannah announced on April 8 Elliana was dead Less than a year after she was born with a rare skin condition called Bullosa epidermolysis junction (EB), which causes painful blistering. The condition is a hereditary illness usually appears in babies or young adults, according to the Mayo clinicand he has no healing. Babies born with the condition are called “butterfly children” because their skin is so tender.
As influencer Hannah Campbell mourns the death of her 10 -month -old daughter, Elliana Rose, she also plays her part to fight the disease that affected her little daughter. Campbell announced on Monday, April 7, that her daughter died after a battle with Bullosa epidermolysis, sharing a warm message through Tiktok where she said (…)
“In a loving memory of Ellie,” Campbell wrote alongside a video shared through Tiktok at the time. “She passed peacefully last night, wrapped her in love.”
@ellianas_journey Today we dress with heavy hearts to celebrate life that changed ours forever. This is for you, Ellie. #ellieststrong #Findacureforeb #Ebawareness #ourjourney #flyhhighangel #fyp #Epidermolysisbullosa #Butterflybaby #babytok #babiesoftiktok #infantloss #funeral
Her caption continued, “I don’t know what to do with myself today. I’m heartbreaking, and I’m angry. No child should have to suffer what she did. EB stole it from us. Let’s fight for healing so no other family has to feel this. Thank you for love her with us.”
On Elliana’s funeral service day Hannah shared another video via Tiktok With her child’s dermatologist, Dr. Diana Reusch, who had traveled to attend the funeral.
“Hannah and Jacob knew that Ellie had an eb, but had not yet had clarity about the exact subtype that Ellie had,” said Dr. Reusch in the video. “Ellie was not only in danger of having extensive skin wounds, but also respiratory and nutritional issues.”
Influencer Lauren Cummings Johnson and her husband Wilson Johnson mourn for the loss of their 9 -month -old daughter, Lily Ann. “Our Sweet Lily Ann went to be with Jesus on Sunday, April 6,” wrote Lauren and Wilson in a joint mail shared through Instagram on Monday, April 7. “She was exactly 9 months old, 9 months our (…)
Children born with eb are not expected, says Dr. Reusch, live in the past. “Ellie was fighting for her life since the day she was born,” he continued. “There is no way in which Ellie’s parents could have known ahead of time or preventing Ellie’s condition.”
Dr. Reusch there is no “cure for EB at the moment,” saying, “I can’t start telling you how terrible felt to tell Hannah and Jacob there is nothing that Ellie’s parents could have done to change what happened.”
“The encouraging news is that I think hope is on the horizon as gene science and therapy developed,” he continued. “We’re not there yet, but in the coming years I think we can get there.”
